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de:link:ehealth [2012/04/09 00:39] – angelegt alogde:link:ehealth [Unknown date] (current) – external edit (Unknown date) 127.0.0.1
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-====== Open Health Data: Links ====== +Moved to [[data:health]]
-===== Raw Data ===== +
-  * Open Government Data +
-  * Public Sector Information +
-  * Private Initiativen +
-    * Weltweit: +
-      * http://www.clinicaltrial.gov/  +
-      * http://opendatafoundation.org/?lvl1=about&lvl2=organization   +
-    * USA: +
-      * Positivliste von gedeckten Medikamenten: http://www.fingertipformulary.com/ (How drugs are covered under Medicare Part D) +
-      * Statistische Information über Krankheiten: http://www.cdc.gov/DataStatistics/ (Everything the Center for Disease Control (CDC) wants you to know) +
-      * Records / Stats: https://datamarket.azure.com/dataset/8c30d4d3-0846-4b08-9991-104958f24ca7 (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more) +
-      * Records / Stats: https://www.practicefusion.com/research (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more) +
-      * http://www.va.gov/bluebutton/ - “Download my Data” Knopf im Kriegsveteranen-Gesundheitssystem +
-    * Schweden +
-      * http://www.medicinera.se  +
-    * Schweiz +
-      * http://www.clinicaltrial.gov/ct2/results?term=switzerland +
-      * Arzneimittelkompendium: kompendium.ch  +
-      * Arzneimittelkompendium: ywesee.ch +
-      * Preisvergleiche: comparis.ch, etc. +
-  * Andere +
-===== Open Data Projects =====  +
-  * Krankheitsbilder: http://www.patientslikeme.com/ +
-  * Prothesen: http://www.openprosthetics.org/, http://opensource.com/life/09/12/can-open-source-create-better-prosthetics +
-  * Genom-Information: https://www.23andme.com/  +
-  * http://curetogether.com/ +
-===== Standards und Formatfragen =====  +
-  * http://openhealth.morfeo-project.org/   +
-  * http://www.openhealthtools.org/   +
-  * http://www.openhealth.org/   +
-  * https://wiki.nci.nih.gov/display/VKC/Open+Health+Natural+Language+Processing+%28OHNLP%29+Consortium  +
-  * http://resmedicinae.sourceforge.net/ +
-  * Diverse Anwendungen und Programme: http://www.cms.gov/home/rsds.asp  (Treasure trove of data from the Center for Medicare & Medicaid Services (CMS)) +
-  * Hospital Compare database (Beispiel für Quality metrics) http://hospitalcompare.hhs.gov/  (CMS’s Hospital Compare database – quality metrics for thousands of hospitals) +
-  * Tool um Daten zu aggregieren: http://dataferrett.census.gov/ Census and insurance demographics +
-===== Communities / Berichterstattung =====   +
-  * http://openhealthnews.com/  +
-===== Journals ===== +
-  * http://www.benthamscience.com/open/tohspj/index.htm +
-===== Beratungsfirmen unter dem Open Health Schlagwort ===== +
-  * http://www.openhealth.co.uk/ +
-  * http://www.openhealth.com.au/ +
-===== Gesetzgebung =====  +
-  * Schweiz +
-    * http://www.admin.ch/ch/d/sr/81.html  +
-  * USA +
-    * http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act  +
-    * http://www.genome.gov/24519851  +
-===== Cases =====  +
-  * Schweiz +
-  * Canada +
-    * Merck Frosst Canada Ltd. v. Canada (Health), 2012 SCC 3; Entscheid vom 3. Februar 2012: Interessen des Geheimnisberechtigten (Schutzstandard, Beweislast, Informationspflichten): http://scc.lexum.org/en/2012/2012scc3/2012scc3.html +
-===== Issue Spotting Exercises (in Aufsätzen und Präsentationen) ===== +
-  * http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1116601/ +
-  * http://www.mlanet.org/government/gov_pdf/publicaccesstohealthinformation_june04_edited.pdf +
-  * http://www.wto.org/english/tratop_e/trips_e/techsymp_feb11_e/mirza_18.2.11_e.pdf +
-  * http://ehealth-connection.org/files/conf-materials/eHealth%20Portals%20-%20Access%20to%20Health%20Information.pdf +
-===== Hackathons held ===== +
-  * UC Berkeley, 30 Sept 2011 http://entrepreneurship.berkeley.edu/resources/health_data_hackathon_schedule.html +
-  * NYC, August 2011: http://www.health20nyc.com/messages/20605811/?action=detail&messageId=20605811 +
-  * Hackinghealth, CA, 24/25 Feb 2012: http://www.hackinghealth.ca/ +
-  * Health Tap, Sep 2010: http://blog.healthtap.com/2010/09/hundreds-participate-in-healthtaps-first-ever-health-hackathon/ +
-===== Cloud Offerings ===== +
-  * motherknows.com (not open data) +
-===== Musterpolicies für Access ===== +
-  * USA: +
-    * http://www.nlm.nih.gov/hmd/manuscripts/phi.pdf +
-===== Anything Else =====  +
-  * Studie “Personalisierte Medizin”: http://www.ta-swiss.ch/?uid=189+
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