Open Health Data Resources & Repositories

• http://www.bag.admin.ch/hospital/index.html?lang=fr
• http://aerztestatistik.myfmh2.fmh.ch/
• http://www.bfs.admin.ch/bfs/portal/fr/index/themen/14.html

• http://onb.tarmedsuisse.ch/
• https://github.com/datasets/tarmed-suisse
• http://datahub.io/dataset/tarmed-suisse

• Haute école de santé http://www.heds-ge.ch/portail/welcome.nsf/pages/contactsF
• Office fédéral de l'environement (OFEV) http://www.bafu.admin.ch
• Office fédéral des assurances sociales (OFAS) http://www.bsv.admin.ch
• Office fédéral de la statistique (OFS) http://bfs.admin.ch
• Office fédéral du sport (OFSPO) http://www.baspo.admin.ch
• Secrétariat d'Etat à l'économie (seco) http://www.seco.admin.ch
• Swissmedic http://www.swissmedic.ch
• SUVA http://www.suva.ch
• Office fédéral de la formation professionnelle et de la technologie (OFFT) http://www.bbt.admin.ch
• Conférence suisse des directrices et directeurs cantonaux des affaires sanitaires (CDS) http://www.gdk-cds.ch
• Observatoire suisse de la santé (obsan) http://www.obsan.ch
• Croix-Rouge suisse (CRS) http://www.redcross.ch
• Bureau suisse de prévention des accidents (bpa) http://www.bpa.ch
• Garde aérienne suisse de sauvetage (REGA) http://www.rega.ch
• Alliance suisse des samaritains (ASS) http://www.samaritains.ch
• Ligue suisse contre le cancer http://www.swisscancer.ch
• Fédération des médecins suisses (FMH) http://www.fmh.ch
• Société suisse d'odontostomaltologie (SSO) http://www.sso.ch
• Fondation Promotion santé suisse http://promotiondelasante.ch
• Santésuisse http://santesuisse.ch

• BAG Statistics http://www.bag.admin.ch/themen/krankenversicherung/01156/
• Health Insurance Premium Data, 1998-2012
• Generic Drugs
• Private Initiatives
• Worldwide:
• http://www.clinicaltrial.gov/
• http://opendatafoundation.org/?lvl1=about&lvl2=organization
• USA:
• Positivliste von gedeckten Medikamenten: http://www.fingertipformulary.com/ (How drugs are covered under Medicare Part D)
• Statistische Information über Krankheiten: http://www.cdc.gov/DataStatistics/ (Everything the Center for Disease Control (CDC) wants you to know)
• Records / Stats: https://datamarket.azure.com/dataset/8c30d4d3-0846-4b08-9991-104958f24ca7 (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)
• Records / Stats: https://www.practicefusion.com/research (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)
• http://www.va.gov/bluebutton/ - “Download my Data” Knopf im Kriegsveteranen-Gesundheitssystem

* Clinical trials

• http://www.clinicaltrial.gov/ct2/results?term=switzerland
• Arzneimittelkompendium: kompendium.ch
• Arzneimittelkompendium: ywesee.ch
• Preisvergleiche: comparis.ch, etc.
• swissIndex: http://www.refdata.ch/content/page_1.aspx?Nid=6&Aid=628&ID=291 (swissINDEX ist eine Datenbank mit Stammdaten über Artikel und Partner im schweizerischen Gesundheitswesen. Die Datenbank ist lizenzkostenfrei verfügbar.)
• Andere

• Nationales Beobachtungsnetz für Luftfremdstoffe (NABEL)
• In-Luft (Zentralschweiz)
• Luft-AG-BS-SO
• Ostluft
• GR-Luft (Graubünden)
• IBK (Bodenseeregion)
• VD (Kanton Waadt)

• Sweden
  • http://www.medicinera.se

• Krankheitsbilder: http://www.patientslikeme.com/
• Prothesen: http://www.openprosthetics.org/, http://opensource.com/life/09/12/can-open-source-create-better-prosthetics
• Genom-Information: https://www.23andme.com/
• http://curetogether.com/

• http://openhealth.morfeo-project.org/
• http://www.openhealthtools.org/
• http://www.openhealth.org/
• https://wiki.nci.nih.gov/display/VKC/Open+Health+Natural+Language+Processing+%28OHNLP%29+Consortium
• http://resmedicinae.sourceforge.net/
• Diverse Anwendungen und Programme: http://www.cms.gov/home/rsds.asp (Treasure trove of data from the Center for Medicare & Medicaid Services (CMS))
• Hospital Compare database (Beispiel für Quality metrics) http://hospitalcompare.hhs.gov/ (CMS’s Hospital Compare database – quality metrics for thousands of hospitals)
• Tool um Daten zu aggregieren: http://dataferrett.census.gov/ Census and insurance demographics
• IHE - http://www.ihe.net/ IHE is an initiative by healthcare professionals and industry to improve the way computer systems in healthcare share information. IHE promotes the coordinated use of established standards such as DICOM and HL7 to address specific clinical need in support of optimal patient care.

• http://openhealthnews.com/

• http://www.benthamscience.com/open/tohspj/index.htm

• http://www.openhealth.co.uk/
• http://www.openhealth.com.au/

• Schweiz
  • http://www.admin.ch/ch/d/sr/81.html
  • Strategie eHealth Schweiz: http://www.bag.admin.ch/themen/gesundheitspolitik/10357/10359/index.html
• USA
  • http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act
  • http://www.genome.gov/24519851

• Schweiz
  • ehealthsuisse, Koordinationsorgan Bund-Kantone, http://www.e-health-suisse.ch/
• Canada
  • Merck Frosst Canada Ltd. v. Canada (Health), 2012 SCC 3; Entscheid vom 3. Februar 2012: Interessen des Geheimnisberechtigten (Schutzstandard, Beweislast, Informationspflichten): http://scc.lexum.org/en/2012/2012scc3/2012scc3.html

• http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1116601/
• http://www.mlanet.org/government/gov_pdf/publicaccesstohealthinformation_june04_edited.pdf
• http://www.wto.org/english/tratop_e/trips_e/techsymp_feb11_e/mirza_18.2.11_e.pdf
• http://ehealth-connection.org/files/conf-materials/eHealth%20Portals%20-%20Access%20to%20Health%20Information.pdf

• UC Berkeley, 30 Sept 2011 http://entrepreneurship.berkeley.edu/resources/health_data_hackathon_schedule.html
• NYC, August 2011: http://www.health20nyc.com/messages/20605811/?action=detail&messageId=20605811
• Hackinghealth, CA, 24/25 Feb 2012: http://www.hackinghealth.ca/
• Health Tap, Sep 2010: http://blog.healthtap.com/2010/09/hundreds-participate-in-healthtaps-first-ever-health-hackathon/

• USA:
  • http://www.nlm.nih.gov/hmd/manuscripts/phi.pdf

• Studie “Personalisierte Medizin”: http://www.ta-swiss.ch/?uid=189

Scraping

• https://scraperwiki.com/

Données du SITG

• http://openetherpad.org/dDJxfJiCQZ

Alergies

• http://www.bag.admin.ch/themen/lebensmittel/04861/index.html?lang=fr
• Intoxications en Suisse : http://www.toxi.ch/upload/pdf/2012_ErsteZahlen2011_F.pdf