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data:health [2012/09/26 22:36] – [Cases] olivereggerdata:health [2015/08/11 11:01] (current) – [Diverse Swiss information links] loleg
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-====== Open Health Data: Links ====== +====== Open Health Data Resources & Repositories ====== 
-===== Raw Data ===== + 
-  * Open Government Data +==== Statistical informations ==== 
-    * Schweiz + 
-      * BAG Statistiken http://www.bag.admin.ch/themen/krankenversicherung/01156/index.html?lang=de +  * http://www.bag.admin.ch/hospital/index.html?lang=fr 
-  * Public Sector Information +  * http://aerztestatistik.myfmh2.fmh.ch/ 
-  * Private Initiativen +  * http://www.bfs.admin.ch/bfs/portal/fr/index/themen/14.html  
-    * Weltweit:+ 
 +==== TARMED ==== 
 + 
 +  * http://onb.tarmedsuisse.ch/ 
 +  * https://github.com/datasets/tarmed-suisse 
 +  * http://datahub.io/dataset/tarmed-suisse 
 + 
 +==== Diverse Swiss information links ==== 
 + 
 +  * Haute école de santé http://www.heds-ge.ch/portail/welcome.nsf/pages/contactsF 
 +  * Office fédéral de l'environement (OFEV) http://www.bafu.admin.ch 
 +  * Office fédéral des assurances sociales (OFAS) http://www.bsv.admin.ch 
 +  * Office fédéral de la statistique (OFS) http://bfs.admin.ch 
 +  * Office fédéral du sport (OFSPO) http://www.baspo.admin.ch 
 +  * Secrétariat d'Etat à l'économie (seco) http://www.seco.admin.ch 
 +  * Swissmedic http://www.swissmedic.ch 
 +  * SUVA http://www.suva.ch 
 +  * Office fédéral de la formation professionnelle et de la technologie (OFFT) http://www.bbt.admin.ch 
 +  * Conférence suisse des directrices et directeurs cantonaux des affaires sanitaires (CDS)   http://www.gdk-cds.ch 
 +  * Observatoire suisse de la santé (obsan) http://www.obsan.ch 
 +  * Croix-Rouge suisse (CRS) http://www.redcross.ch 
 +  * Bureau suisse de prévention des accidents (bpa) http://www.bpa.ch 
 +  * Garde aérienne suisse de sauvetage (REGA) http://www.rega.ch 
 +  * Alliance suisse des samaritains (ASS) http://www.samaritains.ch 
 +  * Ligue suisse contre le cancer http://www.swisscancer.ch 
 +  * Fédération des médecins suisses (FMH) http://www.fmh.ch 
 +  * Société suisse d'odontostomaltologie (SSO) http://www.sso.ch 
 +  * Fondation Promotion santé suisse http://promotiondelasante.ch 
 +  * Santésuisse http://santesuisse.ch 
 +  * [[http://www.swisstph.ch/services/ehealth/ehealth-toolbox.html|Swiss TPH eHealth toolbox]] with open source applications 
 +===== Swiss Health Data ===== 
 + 
 +      * BAG Statistics http://www.bag.admin.ch/themen/krankenversicherung/01156/ 
 +      * [[http://repository.opendata.ch/bundesamtgesundheit/|Health Insurance Premium Data, 1998-2012]] 
 +      * [[http://repository.opendata.ch/genericdrugs/|Generic Drugs]] 
 +  * Private Initiatives 
 +    * Worldwide:
       * http://www.clinicaltrial.gov/        * http://www.clinicaltrial.gov/ 
       * http://opendatafoundation.org/?lvl1=about&lvl2=organization         * http://opendatafoundation.org/?lvl1=about&lvl2=organization  
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       * Records / Stats: https://www.practicefusion.com/research (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)       * Records / Stats: https://www.practicefusion.com/research (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)
       * http://www.va.gov/bluebutton/ - “Download my Data” Knopf im Kriegsveteranen-Gesundheitssystem       * http://www.va.gov/bluebutton/ - “Download my Data” Knopf im Kriegsveteranen-Gesundheitssystem
-    * Schweden + 
-      * http://www.medicinera.se  +== Clinical trials == 
-    * Schweiz+
       * http://www.clinicaltrial.gov/ct2/results?term=switzerland       * http://www.clinicaltrial.gov/ct2/results?term=switzerland
       * Arzneimittelkompendium: kompendium.ch        * Arzneimittelkompendium: kompendium.ch 
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       * swissIndex: http://www.refdata.ch/content/page_1.aspx?Nid=6&Aid=628&ID=291 (swissINDEX ist eine Datenbank mit Stammdaten über Artikel und Partner im schweizerischen Gesundheitswesen. Die Datenbank ist lizenzkostenfrei verfügbar.)        * swissIndex: http://www.refdata.ch/content/page_1.aspx?Nid=6&Aid=628&ID=291 (swissINDEX ist eine Datenbank mit Stammdaten über Artikel und Partner im schweizerischen Gesundheitswesen. Die Datenbank ist lizenzkostenfrei verfügbar.) 
   * Andere   * Andere
-  * Air Pollution:+ 
 +==== Swiss Air Pollution ==== 
       * [[http://www.bafu.admin.ch/luft/luftbelastung/blick_zurueck/datenabfrage/index.html?lang=de|Nationales Beobachtungsnetz für Luftfremdstoffe (NABEL)]]       * [[http://www.bafu.admin.ch/luft/luftbelastung/blick_zurueck/datenabfrage/index.html?lang=de|Nationales Beobachtungsnetz für Luftfremdstoffe (NABEL)]]
       * [[http://www.in-luft.ch/luftqualitaet/archiv_messwerte|In-Luft]] (Zentralschweiz)       * [[http://www.in-luft.ch/luftqualitaet/archiv_messwerte|In-Luft]] (Zentralschweiz)
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       * [[http://www.gr-luft.ch/main.php?mlt_lang=1|GR-Luft]] (Graubünden)       * [[http://www.gr-luft.ch/main.php?mlt_lang=1|GR-Luft]] (Graubünden)
       * [[http://www.bodenseekonferenz-luft.org/|IBK]] (Bodenseeregion)       * [[http://www.bodenseekonferenz-luft.org/|IBK]] (Bodenseeregion)
 +      * [[http://www.vd.ch/themes/environnement/air/qualite-de-lair/requetes-de-donnees/|VD]] (Kanton Waadt)
 +
 +==== International Health Data ====
 +
 +    * Sweden
 +      * http://www.medicinera.se/
 +    * EU health research partners database
 +      * http://www.fitforhealth.eu/
 ===== Open Data Projects =====  ===== Open Data Projects ===== 
 +
   * Krankheitsbilder: http://www.patientslikeme.com/   * Krankheitsbilder: http://www.patientslikeme.com/
   * Prothesen: http://www.openprosthetics.org/, http://opensource.com/life/09/12/can-open-source-create-better-prosthetics   * Prothesen: http://www.openprosthetics.org/, http://opensource.com/life/09/12/can-open-source-create-better-prosthetics
   * Genom-Information: https://www.23andme.com/    * Genom-Information: https://www.23andme.com/ 
   * http://curetogether.com/   * http://curetogether.com/
 +
 ===== Standards und Formatfragen =====  ===== Standards und Formatfragen ===== 
 +
   * http://openhealth.morfeo-project.org/     * http://openhealth.morfeo-project.org/  
   * http://www.openhealthtools.org/     * http://www.openhealthtools.org/  
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   * Tool um Daten zu aggregieren: http://dataferrett.census.gov/ Census and insurance demographics   * Tool um Daten zu aggregieren: http://dataferrett.census.gov/ Census and insurance demographics
   * IHE - http://www.ihe.net/ IHE is an initiative by healthcare professionals and industry to improve the way computer systems in healthcare share information. IHE promotes the coordinated use of established standards such as DICOM and HL7 to address specific clinical need in support of optimal patient care.    * IHE - http://www.ihe.net/ IHE is an initiative by healthcare professionals and industry to improve the way computer systems in healthcare share information. IHE promotes the coordinated use of established standards such as DICOM and HL7 to address specific clinical need in support of optimal patient care. 
 +
 ===== Communities / Berichterstattung =====   ===== Communities / Berichterstattung =====  
 +
   * http://openhealthnews.com/    * http://openhealthnews.com/ 
 +
 ===== Journals ===== ===== Journals =====
 +
   * http://www.benthamscience.com/open/tohspj/index.htm   * http://www.benthamscience.com/open/tohspj/index.htm
-===== Beratungsfirmen unter dem Open Health Schlagwort =====+ 
 +===== Open Health consulting ===== 
   * http://www.openhealth.co.uk/   * http://www.openhealth.co.uk/
   * http://www.openhealth.com.au/   * http://www.openhealth.com.au/
-===== Gesetzgebung ===== + 
 +===== Laws (Gesetzgebung) =====  
   * Schweiz   * Schweiz
     * http://www.admin.ch/ch/d/sr/81.html      * http://www.admin.ch/ch/d/sr/81.html 
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     * http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act      * http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act 
     * http://www.genome.gov/24519851      * http://www.genome.gov/24519851 
 +
 ===== Cases =====  ===== Cases ===== 
 +
   * Schweiz   * Schweiz
     * ehealthsuisse, Koordinationsorgan Bund-Kantone, http://www.e-health-suisse.ch/     * ehealthsuisse, Koordinationsorgan Bund-Kantone, http://www.e-health-suisse.ch/
   * Canada   * Canada
     * Merck Frosst Canada Ltd. v. Canada (Health), 2012 SCC 3; Entscheid vom 3. Februar 2012: Interessen des Geheimnisberechtigten (Schutzstandard, Beweislast, Informationspflichten): http://scc.lexum.org/en/2012/2012scc3/2012scc3.html     * Merck Frosst Canada Ltd. v. Canada (Health), 2012 SCC 3; Entscheid vom 3. Februar 2012: Interessen des Geheimnisberechtigten (Schutzstandard, Beweislast, Informationspflichten): http://scc.lexum.org/en/2012/2012scc3/2012scc3.html
 +
 ===== Issue Spotting Exercises (in Aufsätzen und Präsentationen) ===== ===== Issue Spotting Exercises (in Aufsätzen und Präsentationen) =====
 +
   * http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1116601/   * http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1116601/
   * http://www.mlanet.org/government/gov_pdf/publicaccesstohealthinformation_june04_edited.pdf   * http://www.mlanet.org/government/gov_pdf/publicaccesstohealthinformation_june04_edited.pdf
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   * http://ehealth-connection.org/files/conf-materials/eHealth%20Portals%20-%20Access%20to%20Health%20Information.pdf   * http://ehealth-connection.org/files/conf-materials/eHealth%20Portals%20-%20Access%20to%20Health%20Information.pdf
 ===== Hackathons held ===== ===== Hackathons held =====
 +
   * UC Berkeley, 30 Sept 2011 http://entrepreneurship.berkeley.edu/resources/health_data_hackathon_schedule.html   * UC Berkeley, 30 Sept 2011 http://entrepreneurship.berkeley.edu/resources/health_data_hackathon_schedule.html
   * NYC, August 2011: http://www.health20nyc.com/messages/20605811/?action=detail&messageId=20605811   * NYC, August 2011: http://www.health20nyc.com/messages/20605811/?action=detail&messageId=20605811
   * Hackinghealth, CA, 24/25 Feb 2012: http://www.hackinghealth.ca/   * Hackinghealth, CA, 24/25 Feb 2012: http://www.hackinghealth.ca/
   * Health Tap, Sep 2010: http://blog.healthtap.com/2010/09/hundreds-participate-in-healthtaps-first-ever-health-hackathon/   * Health Tap, Sep 2010: http://blog.healthtap.com/2010/09/hundreds-participate-in-healthtaps-first-ever-health-hackathon/
-===== Cloud Offerings ===== +
-  * motherknows.com (not open data)+
 ===== Musterpolicies für Access ===== ===== Musterpolicies für Access =====
 +
   * USA:   * USA:
     * http://www.nlm.nih.gov/hmd/manuscripts/phi.pdf     * http://www.nlm.nih.gov/hmd/manuscripts/phi.pdf
 +
 ===== Anything Else =====  ===== Anything Else ===== 
   * Studie “Personalisierte Medizin”: http://www.ta-swiss.ch/?uid=189   * Studie “Personalisierte Medizin”: http://www.ta-swiss.ch/?uid=189
 +
 +Scraping
 +  * https://scraperwiki.com/
 +
 +Données du SITG 
 +  * http://openetherpad.org/dDJxfJiCQZ
 +
 +Alergies
 +
 +  * http://www.bag.admin.ch/themen/lebensmittel/04861/index.html?lang=fr
 +  * Intoxications en Suisse : http://www.toxi.ch/upload/pdf/2012_ErsteZahlen2011_F.pdf
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